Cannabis Mothers speak out about NICE Guidelines
FOR IMMEDIATE RELEASE
Hemp and CBD Media (HCM) Interviews Hannah Deacon, mother of Alfie Dingley, to ask what she thinks of the NICE (National Institute for Health and Care Excellence) interim guidance for cannabis-based medicinal products – released August 8th, 2019.
A brief summary of the review indicates that more evidence, and randomized controlled trials are needed to fully understand the long term effects and side effects of cannabis based medicines on patients, stating there is simply not enough evidence that it is safe.
When asked for her thoughts on NICE’s findings Hannah said “I think this is absolutely ridiculous! Are we saying that every country in the world with a medical cannabis legislation is wrong? Are we that arrogant? I think that we are pharmaceuticalizing cannabis, and that is wrong. It does not lend itself to a randomized controlled trial process, because of the nature of the plant.”
Hannah moves on to to say “Until the exceptionality of this medicine is accepted, we’re not going to move forward, I don’t think. I think that is extremely sad, I think NICE are outdated” Hannah openly states that she, herself applied to be on the panel. She was told that she could be, but only if sacrificing any media opportunities, or being able to talk about her feelings about cannabis. Hannah points to the hypocrisy of the situation stating “I know there are people on that panel, that have created that guidance, who have openly in the last year, talked to the media about their concerns about cannabis medicine. My feeling is that there is a real question to be asked of these people that actually wrote this guidance, and it’s very very concerning, and I’m very very upset and angry about it, because all it does is block access! Children, and the families I work with, they haven’t got 10, 15, 20 years to wait for randomized controlled trials, and actually what will happen at the end of those trials when a pharmaceutical company makes the medicine – That will still be inferior to the plant!”
Hannah speaks of her greatest concern as a mother and advocate, being the alternative for families who are still going to be fighting the restrictions for access to cannabis medicine from our government saying “Actually my greatest concern is that families who are very vulnerable, with very very sick children will turn to the black market, and use products which are inferior and are not safe.” In comparison, Hannah then raises the issue of Sativex, a scheduled drug that has had trials conducted. NICE’s recommendation for Sativex fell short only based on it’s cost-effectiveness. “Sativex is 50/50 CBD/THC. So they’re saying there’s no evidence that THC is safe, yet they’ve done trials with Sativex. THC doesn’t suddenly change if you put it in a different medicine, it’s THC! It shows the lack of understanding of cannabis from the people that have written this ‘evidence’ and this guidance.”
When Callie Blackwell was asked about the recent NICE interim guidelines her response was: “They are barbaric. Nothing has changed for the majority of people who require Cannabis to live with any quality. I could go through these guidelines and tear them to shreds with primary ‘evidence’ that they would rather call anecdotal – This is heartbreaking.” In this interview with Hemp & CBD Media , Callie discusses her difficult role in providing cannabis oil to those desperately in need.
Callie has an affinity with many of the people she helps having turned to cannabis oil herself as a last resort when her Son Deryn was in a critical condition. The irony of the current situation is that desperately ill people are turning to people like Callie to access ‘medicinal’ cannabis sourced and provided illegally under current legislation.
NOTES TO EDITOR
- Market research commissioned by the CMC estimates that the CBD market is currently one of the fastest growing wellbeing product categories in the UK. At the current rate it will be worth almost £1B per annum by 2025, equivalent in size to the current entire UK herbal supplement market.
- Hannah Deacon and Callie Blackwell are mothers of children who have benefited from cannabis products which have has a significant and marked improvement in their lives.
- The interim NICE guidelines are available here https://www.nice.org.uk/news/article/nice-draft-guidance-and-nhs-england-review-highlight-need-for-more-research-on-cannabis-based-medicinal-products
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